Journey part 1 day 5

HI everyone, yesterday i came to the hospital with Hannah after i spent the past day in a half home with the girls, i  took the girls to Coney Island on sunday courtesy to my bff Shenna we had a great time kairi and her godmother(Shenna) mostly went on rides i went one with her but that wasn't a good experience for me it was the sky flyer i think i didn't like being that high off the ground like that lol,  Kairi kept saying imagine were at a picnic and i kept screaming i'm imagining i'm on the ground safely lol too funny.  Hannah has had a few ups and downs these past few days she has been back and forth  on a C-pap to a by-pap because she kept de-sating at very low numbers, the doctors were concerned with the de-sats they weren't sure if it was the VSD in the heart causing the de-sats or a lung issue causing it, If its a lung issue putting in the PA band can cause more harm then good and doing the VSD repair at her age with her diagnoses could be risky, but done.  The recovery process could be longer.

Yesterday ENT's (ear and throat) team came in they  used a camera like tube to look down her throat and nasal passage to see if there were any abnormalities or blockage interfering With her breathing, thank god there was nothing everything was normal and doing its job.  I was happy to hear that everything was normal. ENT did see some swelling behind the vocal cord which is caused by acid (not related to any of her symptoms) so they put her on Zantac for acid reflux besides that all is good on that part.  The Pulmonary Lung Specialist team came in to see Hannah they wanted to do a viral test on her it all came back negative (wasn't worried) the pulmonary team wanted to make sure leah's cold didn't get to Hannah.  The doctors order more labs which mean more needles my poor baby, i hate the fact that she has to go through this it literally hurts my heart but i know its for the better and one day soon Hannah will be home no doctors, no needles...just family. anyway they did a blood gas on her and again her Co2 was high extremely high  the reason as to why its high could be 1.she's holding her breathe 2. her brain is effecting her breathing the doctor have to figure out which it is.

Today Hannah is doing a lot better her de-sats have slowed down she resting more comfortably, the doctors came in and informed us that today we WILL have a definite answer on if and when surgery will be done and which surgery will be done thats bittersweet for kevin and i, he's worried about us picking the right surgery and how well is Hannah going to recover.  I know god is going to help us make the right choice for hannah with the doctors expertise and knowledge plus our faith i know i'm going to be at peace with my choice regardless of the outcome. Hannah will be back on her feeds today  YAY!!! of course there starting her slow but something is better then nothing i'm sure she will appreciate it.  We spoke to the doctors they decided the VSD repair was the best opinion for Hannah due to the drop in  her saturations if they did the PA band it could cause more de-sats which she doesn't need, there main concern is after the surgery she will be intubated and weaning her off the vent might be a issue but i'm not worried my lil Hannah is strong and i confess she will do fine during surgery and after surgery i confess she will wean off the vent come home and enjoy being with the family together. My heavenly father is in control he got this....

This is a picture of my sister Onica and nephew Daniel they stopped by to see Hannah yesterday, we love having company...Thank you guys for coming to see us.






Ephesians 6:10-13
10.Finally, my brethren, be strong in the lord and in the power of his might. 11. Put on the whole amor of god, that you may be able to stand against the wiles of the devil. 12. For we do not wrestle against flesh and blood, but against principalities, against
powers, against the rulers of the darkness of this age, against spiritual
hosts of wickedness in the heavenly places. 13. Therefore take up the whole
armor of god, that you may be able to withstand in the evil day, and having done all, to stand.