Christmas In July

So all weekend Kairi couldn't wait until monday (today) Hackensack University Hospital is having a Christmas in July party for the kids in the pediatric ward and the siblings (awwwww that is so nice) Kairi was too excited.  My baby girl came back with a ipod nano she told them thats what she wanted for christmas and they told santa, santa also bought something for leah a baby doll, kairi also made earrings, they drew a character picture of her.  I am happy for the child life support they are awesome they keep Kairi entertained while i tend to Hannah, those girls have so much patience and always joyful   special women they are. God bless the whole child life team.


Today was our appointment with the surgeon at Newark Beth Israel Hospital it went fairly well, he had a good spirit i know we found our surgeon its not final yet he said he needs to go over her records and review her echo video to see what the damage is and if there is anything that could cause complications and talk to his team to make sure majority is on board he said he will get back to us by the end of the week.  In the meantime Hannah is doing well besides the fever that keeps coming and going and some withdrawal from being off the fentanyl which they give her morphine or Ativan to help with the withdrawal she's doing good no de-sats so thats good.  It was a ok monday tonight i realized i lost sight of what is really important to me, i need to stick close to god and let him lead my life and stop trying to lead my own life i'm only gonna lead myself into self destruction.  I want to learn to mediate when i feel like i wanna go to a peaceful place just close my eyes and mediate thats what i need *whooo sa* *peace* thats what i need.  Tonights post is sort and sweet  i will keep you guys posted about the surgeon and of course about my Hannah Banna. Goodnight.