This morning they decided they wanted more echo pictures of Hannah's heart, in one of the echo pictures the doctors thought they saw a deformity on one side of the heart we did that they looked it over found out they were wrong everything was ok BUT the new echo picture showed a valve looked smaller then it should and wanted more pictures to see if that is what they saw *sighs* we gave more pictures, now i must say by the third time Hannah was not having it so she gave them a hard time (served them right) in the end they got there pictures it was small but not as small as they thought before, the surgery was still on. Time was going so slow just dragging. At 4pm the surgeon finally comes in only to tell us they cancelled the surgery, the surgeon explained they needed more time to make a decision on whether surgery was the best option for Hannah with the small valve and her low o2 saturation without oxygen and of course having Trisomy 18 he wasn't sure it was the best idea to do the surgery it might've caused more harm then good.
The PA(Pulmonary Artery) band squeezes the hole causing less blood to flow to the lungs which would get rid of all the high pressure in her lung that would help slow down her respirations right now she breathes anywhere from 50's to the 70's, also it will affect her o2 saturation this is where the concern comes in her o2 sat are already low now if they do the procedure it might lower it more that means Hannah would have to have more oxygen...that obviously isn't plan. After listening to the doctors we agreed it would be best to look at every aspect before we jumped into the surgery (not like we really had a choice we cant force the surgeon to do the procedure) right now the plan is the NY cardiologist are gonna contact hannah's cardiologist in NJ and brainstorm to figure out whats really next, in the meantime columbia are going to switch around some medications and she how she does. Right now she's resting peacefully they gave her back her feeds so she's eating again, with everything else i'm leaving this in Gods hands Lord do what u see fit according to your plan. Amen. Lets see what tomorrow brings.
I miss my girls so much its driving me crazy being away from them. At times i feel torn, when i'm spending time with the girls i'm thinking i should be with hannah and when i'm with Hannah i feeling i should be with the girls. Leah could care less right now as long as she in good hands she's ok but Kairi is older, she wants to spend time with me and god knows i want to spend time with her its bad enough i only get her on the weekends, right now i have her for the first half of the summer i'm hoping we could do stuff together this summer i don't want it to be "i cant kai because i have to be with hannah" all the time shes heard that enough, i am only one person. Tomorrow i'm gonna go spend the night with girls maybe kevin will stay with Hannah and i can spend time with my girls. It is so hard but im asking god for all his strength. i know he will make it all right....
Isaiah 41:13
For I, the Lord your God, will hold your right hand,
Saying to you, Fear not, I will help you.
Amen.
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